8 Feb
2011

The Kidney Cancer Association’s repeated pushing away from more citizens of the USA having insurance and affordable health care breaks my heart. When there are Kidney Cancer Warriors right this moment without insurance who are not receiving care, why are they pushing this? Do they want more of us to die from this horrible disease?

I am grateful, extremely grateful, that I had fantastic insurance at my diagnosis. Without it, I would probably not be here right now. My medical costs have been staggering over the past just over two years. Now, I am looking at living many more years due to my insurance covering my surgery, my hospitalizations, and subsequent care.

I’m one of the lucky ones. I fear for our fellow fighters who don’t have any medical coverage. I fear for the ones now and those in the future. KCA should be fighting for move coverage, not less. For more of my fellow Kidney Cancer survivors to be LONG TERM survivors. Not against them.

I wish they would be open to debating this, but, if you disagree with their conservative agenda, your comments are deleted. I hate that I can not donate to KCA. My charity dollars go to other cancer related charities who aren’t pushing us toward less health care coverage.

Again, today, they have posted more and more against ObamaCare. Against my fellow warriors having the healthcare they need.

Is it time we started another Kidney Cancer organization that doesn’t push this agenda on those who are the ones actually with kidney cancer?

What do you think? And, who wants to work with me? It is time that we work toward all of us with kidney cancer having medical coverage! It is time that we all have the best chance of LONG TERM survival!

It is past time.

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It gets better.

by Suzy Smith

4 Nov
2010

I was talking to a few new kidney cancer survivors recently, mainly about how the diagnosis, and subsequent surgery and treatments change your entire life. They do, I’m not going to lie to anyone about it. A diagnosis of cancer, no matter what stage, no matter what type, is life changing. For the [...]

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Vote for Me!

by Suzy Smith

9 Sep
2010

I <3 you all and now that fall is here more posts will actually happen!
Having said that:
Vote for me!

I’m trying to win a Ipod Touch in the “Faces of Kidney Cancer” contest.  You can vote everyday.
This weekend marks my two years of surviving kidney cancer for me.  Thank you all.

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14 Jun
2010

This weekend was the biggest weekend of the year in the tiny town I live just outside of. There are parades of all types,a carnival, an art show, music. It is just a huge fun weekend.
My husband, Tony, and I typically spend a lot of time in town watching the parades, the fireworks, seeing people, [...]

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7 Jun
2010

Hello all, I’m sorry I haven’t posted much my blood family, and chosen family, have been going through some bad things and I had my head wrapped in that.  I’ll post more about that on my main site: MutteringFooldotCom.
Also, thank you all for the encouragement on my last post.  I really am disappointed in [...]

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20 May
2010

I think it is a damn shame that the Kidney Cancer Association is so anti health care reform, especially when we have kidney cancer patients right this moment who can’t get care due to lack of insurance.  Unfortunately with there being 3 doctors and a Vice President of Centacor R&D on the board I shouldn’t [...]

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Cancer blogs

by Suzy Smith

6 May
2010

I just finished reading the archives of a blog of a young woman who is remission from Ewing’s Sarcoma in her hip.  Reading her story made me realize that I really do have some serious post cancer treatment issues.  I think about a reoccurrence a lot, in fact I am terrified of it.  I’m at [...]

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6 May
2010

Tony and I have talked before about being a cancer survivor and staying with the support groups and forums.  It can be very tough when you watch the cancer that you were diagnosed with take someone’s life.   Recently four people I know, or knew of, have died from kidney cancer. I am deeply sorry for [...]

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One of us…

by Suzy Smith

23 Apr
2010

Every day recently someone I know online has been diagnosed with one cancer or another.  Or someone who was at NED stage has a scan that finds new mets.  It is sad, it makes me angry.  I want to scream at the sky that it isn’t fair that another person has to deal with this [...]

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My Story

by Suzy Smith

2 Apr
2010

I had an incidental finding of a tumor back on September 9th. I was in the hospital having a ct scan done for cellulitis of the stomach and belly button. When they came to me with the findings they told me I had a large mass on my right kidney.
My first thought “Oh, shit.” [...]

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